Financial situation is “unsustainable and unjust” as Community Pharmacists take plight to Stormont

Community pharmacists from across Northern Ireland have met politicians at Stormont to showcase their role in addressing winter pressures, whilst also highlighting the threat to services posed by imminent National Insurance Contribution hikes. Community Pharmacy NI says the financial blow is “unsustainable and unjust”.

The Chief Executive of Community Pharmacy NI, Gerard Greene, said,

“Community Pharmacists are caught in a desperate dilemma: they are clearly demonstrating their value by absorbing pressure on frontline healthcare services; and yet they’re also experiencing unrelenting financial pressures over which they have no control.

“On one hand, community pharmacies have been instrumental in tackling winter pressures, with the delivery of Flu and Covid-19; and they are testing and treating key health conditions like bacterial sore throats and urinary tract infections (UTIs) so that less patients need a GP appointment; on the other hand, they are about to face huge hikes in their running costs when the new National Insurance Contributions are introduced in April, which they have no way of absorbing.

“National Insurance Contributions paid by employers are due to rise from 13.8% to 15% from 1 April, in a move introduced by UK Chancellor Rachel Reeves in the Autumn Budget. There are also changes to the National Minimum Wage with Community Pharmacy NI estimating that these changes will cost the sector here an additional £10million a year in payroll costs.”

Gerard Greene explained that, in the face of this, the options for the sector are limited and he has warned that the impact will be felt by patients. He continued,

“In the private sector, businesses facing these National Insurance rises will, most likely, consider increasing the prices they charge for goods and services to cover the extra running cost. As a free public health service, community pharmacies do not have this option and unlike the health service they are not protected from these Budget increases.

“The only other way they can reduce the impact of this increased staff cost is to either cut staff numbers, or to reduce opening hours.

“The reality is that individual pharmacy owners are already propping up the cost of providing this national health service from their own savings, so any further increased costs are simply unsustainable and unjust.

“We welcome the opportunity to meet with elected members today to seek their support. We are asking them to make the case at Westminster for relief from the NIC rise for community pharmacies, as well as for GPs, opticians and dentists, all of whom face the same blow from 1 April.”

Danny Donnelly MLA, who chairs the All-Party Group on Community Pharmacy said,

“The meeting of the All-Party Group was testament to the strong support for the sector from MLAs across the Assembly. We all know and value the work done in our communities by Community Pharmacies providing medications and advice and services to people in need in their local areas.

“We heard about the additional pressures on this vital sector from the UK budget and how this will impact pharmacies across Northern Ireland. We need to see the sector stabilised to fully deliver the services we need to keep people healthy and reduce pressure on other areas of the Health Service.”

Community pharmacist Liam Bradley who runs a number of pharmacies in locations in Derry~Londonderry, Tyrone and Enniskillen said,

“In the wake of the recent extraordinary winter pressures felt across Northern Ireland, we are pleased to showcase the success of community pharmacy teams in keeping patients well at home, without the need for a GP appointment or a trip to the Emergency Department.

“We’re extremely proud of the contribution community pharmacy teams have made in tackling the winter pressures across the health service. These services are a strong example of what various Health Ministers have described as the “shift left”, aimed at keeping people as well as possible, as close to home as possible.

“We also know that, with more investment, we could do even more – there is a lot of clinical expertise which could be further tapped into, to boost community-based healthcare.

“With ongoing financial pressures, medicine shortages and fluctuating drug pricing making cash flow very difficult, this move will, categorically, impact on my ability to continue delivering pharmacy services. I simply cannot absorb these cost increases and consequently opening hours and jobs are at risk, which will ultimately affect our ability to deliver for patients.”

Holywell Trust's Leadership Collective Aims to Strengthen Community Impact in the North West

First Leadership Collective meeting at Holywell

Twenty-three people from across the North West have joined Holywell Trust’s first-ever Leadership Collective, aimed at strengthening community impact and fostering collaboration in the region.

Over the next 10 months these leaders from the community and voluntary sector, private and public sector will gain the skills and networking needed to tackle the region's most pressing social, economic, and political challenges in this new programme from Holywell Trust, in partnership with Fermanagh Trust and Rural Community Network which has been made possible thanks to The National Lottery Community Fund.

Participants can expect to enhance their leadership skills to achieve a greater positive impact on their community through reflective, action-oriented learning. Collective Leadership also aims to address regional imbalances by creating stronger cross-sector relationships and increased policy engagement to develop a resilient, sustainable community sector equipped to navigate challenges.

The members of Holywell Trust’s first Leadership Collective are:

1. Aisling Doherty, Service Manager, Action Mental Health

2. Amy McRory, Youth Engagement and Centre Manager, The Rainbow Project

3. Carlene Lyttle, Innovation and Sustainability Lead, Spraoi agus Spórt

4. Carol-Anne O’Kane, Employment Officer, Action Mental Health

5. Damian McKane, Engineer, Seagate

6. David Douglas, Business Consultant

7. Emmett Friel, Actor/Facilitator, Freelance

8. Fiona Jane Garrett, Communications Consultant

9. Fiona Umetsu, Artistic Director, Foyle Obon

10. Francesca Kelly, Owner, Aurora Counselling

11. Glen Miller, Director, D A Miller & Sons Transport Ltd

12. Grainne Robinson, NW Regional Manager, Woven Housing Association

13. Joanna Gray, Head of Northern Ireland Football Fund, Department for Communities

14. Lauren Hegarty, Centre Based Manager, Education Authority Youth Service

15. Louise Collins, Aquaculture Regional Officer North Bord, Iascaigh Mhara

16. Maria Herron, Co-ordinator, Waterside Women’s Centre

17. Michelle McLaughlin, Project Support Administrator, Seamus Heaney HomePlace

18. Myra McAuliffe, ChangeMakers Donegal Project Coordinator, Inishowen Development Partnership

19. Paul Sceeny, Interim Manager, North West Migrants Forum

20. Peter McBay, DCEO, The Bytes Project

21. Sami Shakir, Employment Officer, Glen Development Initiative

22. Steve Bradley, Chair, ‘Into The West’ rail campaign

23. Tommy Canning, Head of Treatment, Northlands Addiction Treatment Centre

As all the participants gathered together for the introductory session at Holywell this week, some of the participants shared their aspirations for the programme.

Joanna Gray from the Department for Communities said:

“Around these tables, there’s such a wealth of diverse experience—from public sector professionals and private sector commercial experts to individuals with extensive community and voluntary sector backgrounds, as well as others in leadership roles.

“I am hoping to be able to give back some of my experience and learning both as somebody who's worked in the area from a public sector point of view, but also someone who lives here as well.

“There’s a real opportunity here to come together and create something truly exciting.”

Local businessman Glen Miller said:

“This is a great opportunity to come together, collaborate more effectively, and unlock the full potential of the North West—both economically and within our communities and groups. The goal is to find ways to tie all of these efforts together for the benefit of everyone.

“We have so much to offer here, so much potential that has yet to be tapped into. It's about securing the resources this area needs to evolve.

“When groups like this come together collectively, they have an incredibly strong voice that demands attention so by working together, shifting the narrative, and turning this into a positive story.”

Myra McAuliffe from Inishowen Development Partnership said:

“We’re involved in many cross-border projects, and given that Inishowen serves as the hinterland of this area and region, it's crucial to understand the challenges that exist. Equally important is maintaining dialogue to find solutions on a North West basis. It's an exciting time for Derry and the North West and there’s a lot to be optimistic about.

“It’s essential to approach this region with a focus on collaboration and relationships, as they are key drivers of the change that must continue.”

Participants will engage with expert leaders from public, private, and community sectors, promoting partnerships that extend beyond traditional boundaries. The programme’s content will tackle crucial issues such as health, housing, education, and labour markets, and incorporates sessions on private sector engagement, equality, diversity, and policy influence.

The programme will be facilitated through monthly workshops, guest speakers, study visits, and virtual sessions to connect participants with leaders across the UK and Ireland. A midpoint study visit to Dublin will allow participants to explore diverse leadership models and reflect on how they can apply these insights to benefit their communities.

Gerard Deane, Director of Holywell Trust, said:

“Leadership Collective is more than just a programme; it’s a catalyst for positive change and a platform for empowering individuals. We’re thrilled to support this incredibly diverse and talented group of individuals who are already making significant contributions to their communities. By equipping them with the tools and knowledge to strengthen their roles as agents of change, we’re helping to create a ripple effect of progress across Northern Ireland.

“This initiative is about fostering collaboration, building connections, and amplifying their impact. We’re genuinely excited to see the results of their shared efforts and the positive difference they will continue to make in their communities and beyond.”

People Who Have Been Cured of Cancer Still Face Financial Discrimination, Stormont MLAs Hear

MLAs at Stormont have heard from former cancer patients that they face significant discrimination when applying for insurance and mortgages, despite being cancer-free for more than five years. The evidence was presented at today's All-Party Group on Cancer, supported by Cancer Focus NI and chaired by Stewart Dickson MLA.

MLAs heard from Professor Mark Lawler, Associate Pro-Vice-Chancellor and Professor of Digital Health at Queen’s University Belfast, who presented findings on 'The Right to be Forgotten: Ending Financial Discrimination for Cancer Survivors in Northern Ireland'. He revealed that cancer survivors can face premium increases of up to 400% on life insurance and are frequently denied mortgages, despite medical evidence showing they are at no greater risk than the general population after five years of being cancer-free.

International experts Dr. Françoise Meunier, Founder of the European Initiative on Ending Discrimination against Cancer Survivors and Guillaume Kuch, Director of Borrowing Activities at CNP Assurances (France) presented compelling evidence from across Europe, highlighting France's successful implementation of the Right to be Forgotten legislation. They demonstrated how the law has effectively protected cancer survivors while maintaining a viable insurance market.

In many European countries, including France, Belgium, the Netherlands, Portugal, Romania, Spain, Cyprus and more recently Slovenia, legal protections ensure cancer survivors cannot be required to declare their cancer diagnosis to insurance companies after a specified period. In other countries including the Republic of Ireland, insurance companies have introduced a self-regulatory code of conduct. Just last week, the Republic of Ireland have committed to introducing legislation in the new draft Programme for Government, highlighting Northern Ireland's position as one of the few regions in Western Europe without these protections.

Professor Mark Lawler said:

"The evidence that I’ve presented to our politicians is clear - cancer survivors are being unfairly penalised by the financial services industry. In Northern Ireland, we're seeing young adults who had childhood cancers being denied mortgages in their 30s. This isn't just about insurance premiums; it's about allowing people to move forward with their lives. The success of Right to be Forgotten legislation in other European countries shows us there is a better way forward. It is time for Northern Ireland to join our European neighbours in protecting cancer survivors from this ongoing discrimination. This is not about compassion – it is about evidence and acting on that evidence. I implore our politicians to do the right thing and end this outrageous discrimination against the 100,000 cancer survivors in Northern Ireland”.

Richard Spratt, Chief Executive of Cancer Focus NI, said:

"Today's meeting has highlighted the urgent need for legislative change in Northern Ireland. Cancer survivors have fought hard enough to overcome their disease - they shouldn't have to fight financial discrimination too. We're calling on our elected representatives to follow the European example and introduce Right to be Forgotten legislation here. The evidence presented today clearly shows this can be achieved while maintaining a robust insurance market."

David Reid, a Macmillan Welfare Advisor and cancer patient, shared his experience with MLAs:

"Cancer patients, both past and present, often face significant financial discrimination, which can limit their opportunities, such as purchasing a home or traveling to a dream destination. Cancer is no longer solely a disease of the elderly, as more young people are being diagnosed and achieving remission thanks to advances in treatments. With an increasing number of people reaching remission, it is crucial to implement the Right to Be Forgotten to ensure their opportunities are not unfairly restricted. I urge politicians at Stormont to introduce the Right to Be Forgotten, giving cancer survivors the chance to rebuild their lives without unnecessary barriers and making sure patients here are not left behind."

Stewart Dickson MLA, Chair of the All-Party Group on Cancer, said:

“The testimonies we have heard today are both powerful and deeply concerning. Cancer survivors in Northern Ireland deserve to live their lives free from the shadow of financial discrimination. The evidence presented to us is unequivocal – the Right to be Forgotten has worked successfully across Europe, ensuring fairness and dignity for cancer survivors. I will work to ensure that this issue is brought before the Assembly so that we can push for the necessary legislative changes. Cancer survivors deserve the same opportunities as anyone else to rebuild their lives, free from financial discrimination.”

Dr. Françoise Meunier, Founder of the European Initiative to End Discrimination against Cancer Survivors said:

“As I always say, cancer survivors should not pay twice. It is unacceptable that cancer patients once cured, have to face financial discrimination. The Right to Be Forgotten is essential for safeguarding key principles of human rights including human dignity, equality, and privacy.  Governments must ensure that all former cancer patients are granted the right to be forgotten, promoting equality and consumer rights.”

ICC Belfast Waterfront Hall Ulster Hall - Chief Executive Appointment

Following a competitive recruitment process, Rob McConnell has been appointed as the new Chief Executive of ICC Belfast Waterfront Hall and Ulster Hall (BWUH Ltd).

Rob is a Board Director and former NI Head of global technology firm, Expleo. 

He has been a non-executive Director on the board of ICC Belfast, Waterfront Hall and Ulster Hall since April 2023.

Rob is a leader in the digital sector in Northern Ireland, with experience growing fast-moving software and technology businesses in local and global markets.  His commercial experience in strategic solution sales and business transformation has supported the growth of Expleo Technology (Ireland) and Expleo Group (Global) under his leadership.

As an innovator within Northern Ireland’s startup digital community, Rob Chaired Momentum, the representative body for digital industries in Northern Ireland. He worked closely with public sector leaders to cement the role of digital technology in growing the economy and giving a voice to the digital sector at a period of critical growth.

As CEO, Rob will lead a team of over 300 across Northern Ireland’s only purpose-built International Convention Centre, ICC Belfast, along with the iconic Ulster Hall and Waterfront Hall venues.

BWUH Ltd Chair Steve Daniels said,

“We are delighted to have secured Rob McConnell as the new Chief Executive Officer of ICC Belfast, Waterfront Hall, and Ulster Hall. 

“Not only has Rob established his own credentials in leadership, business growth and sales development, he has a strong commercial drive and an extensive knowledge of Northern Ireland’s business and public sectors.  Having worked closely with him in his non-executive role on our Board, we have been impressed by his knowledge of our industry, his strategic approach to solutions and his passion to drive our venues forward in a data driven, innovative way. 

“We are confident that Rob understands the opportunities for growth and development of our business.  He shares our vision to create a world-class stage for extraordinary international business and live entertainment events.  We are excited to have him in this important leadership role, which has the potential to deliver results not only for our venues but for the city of Belfast and the wider region.’

Rob McConnell said,

“I believe that the outstanding facilities, together with the talented team of people at ICC Belfast and its sister venues of the Waterfront Hall and Ulster Hall hold some of Northern Ireland’s untapped economic and cultural potential. 

“ICC Belfast is an economic development engine for Northern Ireland.  It is the jewel in Belfast’s crown. In recent years, Belfast has been named Best UK business events destination and ICC Belfast has picked up the top accolades as best venue in numerous international conference and events awards.  I have seen up close how the team have proven their capabilities working on spectacular events such as One Young World and delivering stunning corporate events for global names including Ferrari, eBay, and AstraZeneca.

“Large scale business events bring knock-on benefits far beyond these venues, from the airports and transport companies, to retailers, hoteliers, restaurants, and local suppliers, as well as the opportunity to create significant employment for the city and region. 

“I am confident that the ingredients are in place to make ICC Belfast one of the most sought-after conference and events destinations in these islands and much further afield.  It is a great privilege to be leading this forward as Chief Executive and I am very much looking forward to it.”

Non-Executive Director Appointment

Following a competitive process, Patricia Burns has been appointed to the board of ICC Belfast, Waterfront Hall, and Ulster Hall as a Non-Executive Director.

Patricia is Chief Financial Officer at Belfast City Airport and has 30+ years of experience driving business performance across a variety of sectors. She previously served as Director of Finance for Europe & Australia at Infrastructure Products CRH Plc.

Patricia has extensive experience in business relationship management and strategic commercial operations and in-depth board experience, with a proven track record in developing high performing global businesses.

In her non-executive role, Patricia will oversee the audit, risk and compliance sub-committee of ICC Belfast, Waterfront Hall, and Ulster Hall.

Patricia said, “It’s a privilege to join an impressive board working to guide and grow the business behind some of Northern Ireland’s most iconic venues.  There are many opportunities for ICC Belfast, Waterfront Hall and Ulster Hall and I look forward to supporting the board’s vision for growth.”

The board chair Steve Daniels said, “We are delighted to have attracted such a talented individual and we look forward to welcoming Patricia to a strong and well-established board team as we plan for an exciting and challenging period ahead.”

Patricia Burns will replace Laura Jackson, Partner at BDO, who is leaving the board having completed two terms as a non-executive board member.

35th Government of the Republic of Ireland Announced

Micheál Martin TD has been elected as Taoiseach by 95 votes to 76. His party, Fianna Fáil, alongside Fine Gael led by Simon Harris TD and a group of regional independent TDs will form the 35th Government of the Republic of Ireland.

The Government has been confirmed as:

• Taoiseach - Micheál Martin TD (Fianna Fáil)

• Tánaiste and Minister for Foreign Affairs and Defence - Simon Harris TD (Fine Gael)

• Minister for Finance - Paschal Donohoe TD (Fine Gael)

• Minister for Public Expenditure - Jack Chambers TD (Fianna Fáil)

• Minister for Justice - Jim O’Callaghan TD (Fianna Fáil)

• Minister for Health - Jennifer Carroll McNeill TD (Health)

• Minister for Education and Youth - Helen McEntee TD (Fine Gael)

• Minister for Housing - James Browne TD (Fianna Fáil)

• Minister for Social Protection, Rural Affairs and the Gaeltacht- Dara Calleary TD (Fianna Fáil)

• Minister for Transport, Environment and Energy - Darragh O’Brien TD (Fianna Fáil)

• Minister for Enterprise and Tourism - Peter Burke TD (Fine Gael)

• Minister for Children and Disability - Norma Foley TD (Fianna Fáil)

• Minister for Arts, Culture, Communications, Media and Sport: Patrick O’Donovan TD (Fine Gael)

• Minister for Higher Education: James Lawless TD (Fianna Fáil)

• Minister for Agriculture: Martin Heydon TD (Fine Gael)

• Government Chief Whip - Mary Butler TD (Fianna Fáil)

It is expected that junior ministers will be announced next week, including those from the regional independent TD group.

Belfast Venues Set to Eliminate Single Use Plastic Cups in UK First

Belfast’s entertainment venues have joined forces to eliminate single use plastic cups at gigs and events in 2025. The move aims to remove 2 million single use plastic cups from nights out in Belfast and eliminate 40 tons of plastic waste annually. Pictured with the new cups (l-r) are:

Charlotte Dryden, Oh Yeah Centre, Stephen Murray, Hospitality Belfast, Kathryn McShane, the Black Box, Danielle Mulhern, the MAC, Alistair McIlveen, North Down Marquees, Jac Callan, Visit Belfast, Iain Bell, ICC Belfast, Waterfront Hall, Ulster Hall and Dermot McGinn, The SSE Arena.

Photo credit: Darren Kidd, Press Eye

Belfast’s entertainment venues have joined forces in a drive to eliminate single use plastic cups at gigs and events in 2025.

The move aims to remove 2 million single use plastic cups from nights out in Belfast and eliminate 40 tons of plastic waste annually.

It’s set to be the first multi-venue scheme of this kind in the UK and Ireland.

The Waterfront Hall, Ulster Hall, The SSE Arena, Oh Yeah Centre, Black Box, Voodoo and The MAC have all invested in the scheme and will introduce reusable cups over the coming months. Other venues are lined up to join the next phase of the citywide rollout.

The 12-month pilot is being driven by the Venue Sustainability Forum (VSF), chaired by Wilton Farrelly, Non-Executive Director of Belfast Waterfront and Ulster Hall Ltd and supported by Visit Belfast.

Iain Bell, Acting Chief Executive of ICC Belfast, Waterfront Hall and Ulster Hall said:

“The task force behind this brilliant new initiative, the Venue Sustainability Forum, are setting out to tackle one of the biggest sustainability challenges affecting us all – single use plastic.

“The switch from glass to plastic remains an important health and safety concern for gigs and entertainment venues, so this is a very positive step towards a solution which addresses both safety and sustainability.”

The participating organisations will partner with North Down Marquees, who will deliver the reusable cups to the venues and pick up used ones, which will be washed in a central washing facility in Carryduff, before being redistributed again.

The SSE Arena will be the first participating venue to implement the use of reusable cups, with the scheme coming into effect from mid-January.

Dermot McGinn, Group Head of Food and Beverage at The Odyssey Trust, said:

“The SSE Arena, Belfast is proud to be the first venue involved in this trial to implement reusable cups. As Northern Ireland’s premier entertainment destination, we are committed to providing customers with the best experience every time while also minimising our environmental impact wherever possible. We are pleased to work alongside other forward-thinking venues to tackle single-use plastic waste and support a more sustainable future for entertainment in Northern Ireland.”

Charlotte Dryden, CEO of the Oh Yeah Centre, said: 

“Oh Yeah is delighted to be involved in the Belfast Reusable Cup initiative. As a grassroots music venue, sustainability is at the top of not just our organisation's agenda but also our community's agenda. This reduction in single use plastic is a brilliant success for venues and Belfast as a city.”

Kathryn McShane, Director of the Black Box, said:

“The joint effort in bringing Belfast's reusable cup scheme for venues has been amazing. We've never liked using single use cups for our standing events at The Black Box, and have been trying to find an alternative for the last number of years, but until now there hasn't been another option that's feasible for us. The positive impact of the reusable cup scheme for The Black Box and for other venues in the City will be huge. It will almost eradicate our need to use any single use plastics in the venue, will drastically reduce our waste and allow our audiences to make more sustainable choices.”

Emmett Ross, Facilities Manager at The MAC, said:

“At the MAC, we are passionate about implementing our artistic and cultural activities as sustainably as possible. In fact, our organisational focus for 25/26 will be 'Climate in Action', meaning this is a perfect time for us to take part in the Belfast Reusable Cup Pilot. We are very proud to be a part of the collaborative group of organisations bringing this scheme to life, and we believe this city-wide initiative shows what can be achieved when organisations have a joint ambition to make a positive change for the future."

Alistair McIlveen of North Down Marquees, said:

“North Down Marquees are thrilled to be on the team that’s helping deliver a SUP (Single Use Plastic) Free Belfast!”

Jac Callan, Senior Manager of Sustainability and Impact at Visit Belfast, said:

“Visit Belfast is delighted to welcome this innovative initiative and to see a diverse range of venues - from grassroots music venues to large arenas - investing in solutions to reduce the events industry’s environmental impact. This collaborative approach not only helps Belfast remain competitive as an events destination but also plays a pivotal role in reducing single use plastics and driving meaningful environmental change.”

Keir Starmer announces AI Opportunities Action Plan

Prime Minister Sir Keir Starmer MP and Peter Kyle MP, the Secretary of State for Innovation, Science and Technology, have published the Government’s AI Opportunities Action Plan.

The UK is currently the 3rd largest AI market globally. This Action Plan has been devised by the Government to signpost how the UK will shape the AI revolution now and in the future.

Laying the Foundations to enable AI

Data Centres form an integral part of the Government’s Action Plan to drive innovation and growth in the AI sector. The report states how the Government will establish AI Growth Zones (AIGZs) to facilitate the accelerated build out of AI data centres, which will include:

• introducing a streamlined planning approvals process and accelerating the provisioning of clean power;

• using AIGZs to drive local rejuvenation, channeling investment into areas with ‘existing energy capacity’;

• quickly nominating at least one AIGZ and working with local regions to secure buy-in for further AIGZs that will contribute to local needs and;

• considering other measures to accelerate buildout of data centres, such as offering central guidance, creating a bespoke planning use-class and considering the case for AI data centres to be eligible for relevant relief schemes that incentivise private sector investment.

Industrial Strategy

The AI Opportunities Action Plan also states how the Government intends to interlink AI with the upcoming Industrial Strategy to create a long-term planning strategy for AI and other technologies.

The Secretary of State Peter Kyle will make a Ministerial Statement on the AI Opportunities Action Plan to the House of Commons this afternoon, after 3:30PM.

Driving Net Zero Transformation - Mid-South West Economic Engine

Businesses in the Mid South West Region are being encouraged to make sustainability their New Year’s resolution by signing up for free support through the Net Zero Transformation Programme, with 50 places currently available to help fast-track the development of action plans.

The Mid South West (MSW) Region Net Zero Transformation Programme, funded by Innovate UK, is designed to help local SMEs reduce carbon emissions and work towards their net zero goals.

One business which has already benefitted from the programme is Mac Zero Modular Buildings, a company based in Dungannon founded by siblings Orla McAvoy Corr and Conor McAvoy.

“Our journey on the programme has been really positive for us as a business and left us with a clear and tangible action plan.”

• Orla McAvoy Corr, Mac Zero

Director Orla McAvoy Corr said:

“We have helped thousands of pupils to #movetozero with new modular extensions to schools throughout Ireland, and as a business, the time was right to engage with MSW Region on the Net Zero Transformation Programme to create our own sustainable plan to enable Mac Zero to #movetozero.

“By participating in the MSW Net Zero Transformation programme, we worked with carbonfit to complete comprehensive assessments of our emissions. We now have baseline measurements, a plan and a timeline, which will significantly reduce our emissions.

“The tracking of emissions and need for a sustainability plan will soon be required by all businesses, and the MSW Net Zero Transformation programme offers companies a clear route in which to achieve this.”

Ninety businesses in total across the three council areas will benefit from bespoke one-to-one Net Zero baseline and action plan development, working directly with the Delivery Partner Carbonfit.

Participating businesses can access:

• Carbon reporting software, expert workshops, and tailored decarbonisation plans.

• Guidance on low-carbon technologies, funding options, and operational efficiency.

• Tools to achieve sustainability goals and enhance market competitiveness.

• Insights to identify key emission sources and implement energy-efficient practices.

• Support to explore renewable energy solutions.

• Focus on understanding and addressing Scope 1 and Scope 2 emissions.

The MSW Region councils (Armagh City, Banbridge and Craigavon, Fermanagh and Omagh and Mid Ulster District Council) are among 21 Local Authority areas from across the UK to receive a share of £6m funding to support progress towards Net Zero.

Chair of the MSW Region Governance Steering Group, Kevin Savage said:

“Mac Zero’s testimonial really highlights the benefits for businesses who sign up for our free Net Zero Transformation Programme.

“There are 50 places remaining and I would highly encourage anyone thinking about how they can implement sustainable practices and reduce their carbon emissions to get in touch.

“This is an opportunity to gain advice from the experts on meeting your environmental commitments, so make sure not to miss it and register now at  https://midsouthwestregion.org/net-zero-transformation/.”

“We are no longer invisible”: Northern Ireland amongst the first in the world to produce estimates of people living with metastatic breast cancer

A new study funded by Cancer Focus Northern Ireland and published today in JAMA Network Open estimates there are around 250 patients diagnosed with metastatic breast cancer annually in Northern Ireland, and almost 1,000 patients are currently living with the disease.

This landmark study of Northern Ireland's patients with metastatic breast cancer, often referred to as secondary breast cancer, will help policy makers improve services for this patient group.

Metastatic breast cancer is incurable and occurs when breast cancer spreads to another part of the body such as the liver, lungs, brain, or bones. The average survival is two to three years for metastatic breast cancer patients.

Crucially, patients with secondary breast cancer are not routinely counted in Cancer Registries worldwide, leaving this group of patients feeling overlooked and forgotten.

Today’s research aligns with the international Lancet Breast Cancer Commission’s Call for Action to improve data on metastatic breast cancer patients. The Commission highlighted that because the number of people living with metastatic breast cancer is unknown, patients may not receive optimal care and access to clinical research.

Led by Dr Damien Bennett, Director of the Northern Ireland Cancer Registry (NICR), analysts Sinéad Hawkins and Helen Mitchell, and other NICR staff, this groundbreaking study provides new information on people living with the disease in Northern Ireland.

Dr Damien Bennett explains: “Although we have good data on first breast cancers, we do not have the same data on secondary breast cancers, which come back after the first diagnosis. This was a real gap in our knowledge which has implications for patients. Now, for the first time in the UK, Ireland, and indeed in most parts of the world, we have produced estimates of new and existing cases of metastatic breast cancer for a whole country using population-based cancer registry data” . 

"We linked cancer registry data with hospital data and reviewed detailed information recorded on death records to identify cases. We estimate an average of 250 new metastatic breast cancer cases each year and just below 1,000 people living with the disease at the end of 2021. Importantly, we estimate the numbers of people living with metastatic breast cancer has increased over time, from 587 in 2009 to 911 in 2020, suggesting metastatic breast cancer patients are living longer, which may be related to new targeted treatments.  However, while it is a great step forward to produce these estimates based on past records, there is no substitute for prospective recording and collection of cancer recurrences by cancer registries, which will require resources”.

The study was funded by the cancer charity, Cancer Focus Northern Ireland.

Richard Spratt, Chief Executive of Cancer Focus NI said: “This groundbreaking research represents a pivotal moment for metastatic breast cancer patients. We are immensely proud to have funded a study that recognises these overlooked patients and which directly addresses a critical gap in cancer data and intelligence. I would like to acknowledge people who were instrumental in advocating for this research, notably Ann McBrien and also Julie Anne Lillis who sadly is no longer with us. This landmark study is not just about numbers – it's about giving voice to those who have been forgotten and to those patients who have gone before us, such as Julie Anne. This is only the first step towards transforming care and support for metastatic breast cancer patients across Northern Ireland, and I am delighted to announce that Cancer Focus NI will be holding two support days in Spring 2025 for anyone with a metastatic breast cancer diagnosis, one in the East and one in the West of the country.’’

A special thanks is documented in the research paper to patients Ann McBrien and Julie Anne Lillis who campaigned for metastatic breast cancer patients in Northern Ireland to be counted, and a clinical audit of their care carried out.

Metastatic breast cancer patient Ann McBrien, who previously worked as an accountant in the NHS, explained: “I was diagnosed with primary breast cancer in 2013, but in 2019 my cancer came back in my lungs as metastatic breast cancer. I was shocked to find that cancer reoccurrences are not identified in the Cancer Registry’s statistics. This leaves patients feeling invisible and left behind. Knowing the importance of data to plan and allocate the correct resources to treatments and care, I wanted to do something to address this information gap. Julie Anne and I approached Cancer Focus NI and I am extremely grateful that the charity responded to our campaign and funded this important work.’’

“After lobbying for the audit, and working with the NI Cancer Registry on the findings, publication of this research gives me a great sense of achievement – we are no longer invisible. However, the advocacy work goes on. Determining the data was just the first step, the real focus is using the data to drive optimal outcomes for metastatic breast cancer patients. I am now asking the Department of Health to apply this data and develop a metastatic breast cancer pathway, with appropriate supports for patients across Northern Ireland. I also hope that this research, which focuses on breast cancer, will lead the way for improvements in data for all cancer patients with metastatic disease.’’

Stuart McIntosh, consultant breast surgeon, and Professor of Surgical Oncology at the Patrick G Johnston Centre of Cancer Research at Queens University, is a member of the Lancet Breast Cancer Commission which made the recommendations to drive up standards in metastatic breast cancer care and improve the experiences and outcomes for people living with the disease.

Stuart McIntosh said: “I am pleased to see Northern Ireland respond to the Commission’s recommendation for metastatic breast cancer data collection.  The Northern Ireland Cancer Registry has carried out excellent work in a short space of time and I am hopeful that the information gained will now be used by policy makers at the Department of Health.

“I am also cognisant of the fact that this initiative was driven by patients who campaigned for it, and appreciate the tireless work of Ann McBrien who has worked with the Registry team and co-authored the research publication. This is a fine example of patients driving forward change that will have benefits for many now, and in the future”.

Refresher on Windsor Framework following democratic consent vote by MLAs

Following Assembly Members’ vote to continue Northern Ireland’s Brexit trading arrangements known as the Windsor Framework, Holywell Trust has provided a refresher on the Agreement and what it means in real terms for people here.

The first exercise of democratic consent which took place this week at Stormont was a measure in the original Protocol to ensure that Northern Ireland has its say. The motion on the continued application of Articles 5 to 10 of the Windsor Framework, which includes arrangements on the Movement of Goods, VAT and Excise, the Single Electricity Market and State Aid, passed by 48 to 36 votes on 10 December 2024.

When the UK officially left the EU in January 2020, it left the EU single market which ensures the free movement of goods, services, capital and people across its territory. This had implications on the island of Ireland and left Northern Ireland sharing a border with the EU.

The EU and the UK negotiated the Protocol on Ireland/Northern Ireland in an attempt to deal with the ‘unique circumstances’ on the island of Ireland. However, some conditions of the Protocol were deemed contentious, as the proposed changes were seen to put a customs border down the Irish Sea.

The Windsor Framework was an updated version of the Protocol, agreed by the UK and EU in February 2023, that sought to provide definitive solutions to ease the movement of goods into Northern Ireland from the rest of the UK.

In January, the DUP also secured guarantees from the UK government in the Safeguarding the Union deal regarding Northern Ireland’s place in the UK internal market.

‘Stormont Brake’ provisions also give the Assembly the power to recommend the blocking of new or updated EU rules from applying in the region. The UK Government would then decide how to proceed.

Some new rules under the Windsor Framework have already been brought in, including on goods such as medicines, addressing concerns about supplies to Northern Ireland.

Another test for its implementation was due on 1st of October when rules on movement of parcels were due to come into effect. These have now been postponed for six months. For members of the public in Northern Ireland, receiving parcels from Great Britain should be unaffected. There will be changes for GB businesses posting to NI businesses, but a trusted trader system will help mitigate the new rules.

During a recent Holywell Trust seminar on the Windsor Framework, Professor David Phinnemore commented:

"Brexit meant disruption and that was rarely fully understood during the UK-wide debate at the time. The question now is where that disruption will now be placed so that it has minimal impact on you.

“Are there benefits to the Windsor Framework? There is potential but I do not subscribe to the notion that it is the best of both worlds.

“If you are a producer in Northern Ireland, you have got greater market access than in any other part of Europe, because you've got direct access into the EU market and you've got unfettered access into the GB market. That's a comparative advantage but exploiting that situation will take some adjustment.”

Dr Lisa Claire Whitten added:

“We haven't fully seen Brexit yet. In a GB context, they've only just started implementing the Border Target Operating Model (the Government’s new approach to importing goods) which means they are only just starting to have new checks and controls coming from EU into GB so that comparative advantage that Northern Ireland has, we haven't seen it in its full effect as yet because not everything has been implemented in terms of the new post-Brexit era of trade across these islands and across Europe.

"We are still in that settling position and any benefits and opportunities will likely come after that rather than during the transition period.”

Holywell Trust Director, Gerard Deane commented:

“Brexit has had real implications for people in Northern Ireland and its important to that people can understand what the outcome of these highly technical negotiations means for them.

“I would like to thank Professor David Phinnemore and Dr Lisa Claire Whitten from Queen’s University for providing their expertise in helping to explain the Agreement and hope this provides clarity for anyone confused by the conversation around the Windsor Framework and Brexit in general.”